Let them eat cake

by Jennifer on December 1, 2011

I have a post I’m writing about planning a birthday party for kids with autism. I’ve been writing it for a while and I’ll probably finally have it ready just in time for me to start planning my daughter’s party in April. In the meantime I’ll give you a hint on what not to do.

Children on the spectrum can be very literal. We all know this. They don’t understand idioms and slang. For those who have seen the Temple Grandin movie this was really well represented when we saw Temple’s impressions of what various sayings meant (animal husbandry, another door opens, get a hold of yourself, etc.).

The other things that kids on the spectrum like is things that are familiar and routine. This is one of the reasons I try and make sure that I serve food that seems to have universal appeal to kids on the spectrum or kids in general – pizza (of course I check for dietary restrictions first).

The one area where I have missed the boat TWICE is in regards to birthday cake. The first year I thought I would be smart and make cupcakes. This way the kids with poor fine motor skills could still eat their cake with minimal assistance. Then I thought I’d make the cupcakes in ice cream cones. Great idea I thought – they’ll be even easier to eat.

While they did go over well, there were a lot of kids who bit into their cones expecting ice cream only to get a mouth full of cake and icing. Not unpleasant, just unexpected.

Obviously I didn’t pay much attention to this because the next year I decided to make cake pops.  For those who are unfamiliar with cake pops, they are cake balls (cake crumbs mixed with icing) that are then stuck on a stick and dipped in chocolate.  I had the same idea….on a stick means easy to eat right?

They are very yummy, but to a child who was expecting a lolly pop, not a completely welcome surprise.  At the end of the party I found plenty of cake pops with one bite out of them as the children searched in vain for a real lolly pop.

In my desire to create the perfect party for these kids who never get invited to parties, and, let’s be honest here, make the other parents go “wow!”, I didn’t take into consideration the particular idiosyncries of the group of children attending the party.  I was in full on party planning mode, and while I did everything I could to make the party fun and accessible for these kids on the spectrum, I certainly dropped the (cake) ball in this area.

This year I will make a traditional cake that everyone can recognize.  I will cut it into slices and give everyone a plate and a fork and consider it a success.

 

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A parent’s worst nightmare

by Jennifer on October 29, 2011

Last Sunday 8 year old Robbie Woods Jr. got separated from his father while out walking on a trail at North Anna Battlefield Park in Virginia.  Robbie is non-verbal and he has autism.  He was found alive yesterday after 6 days. 

I think this is probably every parent’s worst fear, their child getting lost and being unable to find them.  For the parents of a child with autism it is their worst nightmare.

We can teach our neurotypical children not to talk to strangers.  We can instruct them on what to do if they get lost, whether it’s at a shopping mall or in the woods.  My six year old knows that if we’re out and he gets lost, he should stay right where he is and that I’ll find him.  I’ve taught him who he should ask for help, he knows his name, my name and our phone number.   I can’t teach these types of things to my daughter.

Thankfully she doesn’t seem to be a wanderer or a runner but that doesn’t mean we don’t have to be vigilant.  This became crystal clear the day when I was in the basement and when I came upstairs I found her on the front lawn.  All our doors now have alarms and/or child locks so this doesn’t happen again.

When out in public she tends to stick close but she can get distracted so we have to keep our eyes on her at all times.  We also know that complacency is our biggest enemy so we are always on alert.

If she were to get separated from us she wouldn’t know to stop moving.  She would keep walking, and walking, and walking.  She might sit down if she got tired, but she’d be up and moving again as soon as she was rested.  She also wouldn’t respond if someone was calling her name.  You could walk right by her and she wouldn’t acknowledge you were there.  And if by chance someone did find her, she would not be able to tell them her name, my name or anything else. 

There are a number of items currently on the market that parents can purchase to help alleviate some of their fears and keep track of their children.

Adiant Solutions offers a GPS locator bracelet that has a lot of different features like locking bracelet, email and text notification, real-time locator, etc.

The Amber Alert GPS system is compact and can easily be clipped onto a backpack or threaded onto shoe laces.

If you’re planning a trip to an amusement park or the zoo, Safetytat might be something you want to consider.  While not a locator it allows you to “tattoo” your child with your contact information in case your child gets lost.

The Mommy I’m Here kid tracking device is originally designed for parents of toddlers but could definitely be useful for ensuring your child with autism doesn’t wander too far in busy stores or crowded places.  It has a 150 foot range and alerts an audible signal when your child is more than 15 feet away from the transmitter.

Of course, none of this of any use if your sensory defensive child decides to take off their shoes or their bracelet.  Or if your child decides to go for a walk at 3 am in their pajamas.

So for now I’ll just keep up my hyper-vigilance and sleep on the couch by the front door….just in case.

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maybe we should look for a house with a pool

by Jennifer on August 25, 2011

I’m sitting here watching my daughter swim and play in the pool. The day is cloudy and overcast but that doesn’t stop her. I think she likes it because she has the pool to herself.

When we are looking at houses we’ve started looking at houses with pools. I dont know if I really want the expense and upkeep of a pool…but when I watch her swim and hear her laugh, its moving pretty high up the criteria list.

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then I’ll do it myself

August 21, 2011

So we are playing kind of fast and loose this summer. We have so much to do with getting the house ready for sale and how my daughter is just hanging around the house… She is definitely feeling out of sorts with everything that’s going on. Last week she went and got her binder full [...]

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Don’t Fear the Tantrum

August 15, 2011

I was discussing my daughter with my BFF (who is ABA Trained).  We were talking about ABA theories and practices and she said something that has stuck with me.  She said I can’t fear the tantrum.  Parents with kids on the spectrum will understand what I mean.  Hell, most parents understand it.  You know, those [...]

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It’s not easy being….Orange?

August 11, 2011

Ask any mother about food preferences and they’ll all have stories about how picky their children were.  Oh there are some kids out there who will eat anything and everything, but there are plenty that turn up their noses at anything and everything you put in front of them. My daughter is pretty picky.  It [...]

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I guess you need some background

June 30, 2011

I suppose I should have done this at the beginning, but I’ve never been one for following the logical steps.  This website just sort of happened rather spur of the moment as a result of a series I did on travelling with special needs children.  Originally this 3 part series was published at Who Wants [...]

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Snack Time

June 28, 2011

Does anyone else have a child with an apparent hollow leg?  My daughter eats and eats and then eats some more. She’s picky, of course, she’s 8.  There are sensory issues involved as well.   As you can imagine, there aren’t a lot of fruits and vegetables being snacked on here.  She does drink a 100% fruit/veggie [...]

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How far we have come

June 23, 2011

It’s often hard to see how far you have travelled when you’re still on the road.  When you’re in the midst of everything, day after day, the small successes get overlooked and you don’t realize that you’ve made as much progress as you have. I know that we’ve had a great year with my daughter.  [...]

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Parenting autism

June 16, 2011

I remember when my daughter was younger, I used to wish for a sign that said “My daughter isn’t naughty, she has autism”.  When I was explaining this to my therapist she said what I really wanted was a sign that said “I’m not a bad parent, my daughter has autism”. I’ve spoken to a [...]

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